Skip to main content

Have the Paralympics conversation with your Autie

I heard that the Paralympics closing ceremony was amazing! I missed it as well as the Olympics closing ceremony and the Paralympics opening ceremony, one does, a day in the life eh 😅 for a Parent Carer. 

But I did manage to catch loads of sporting events throughout the Paralympics I noticed this time that abilities and eligibilities were clearly written as footnotes on the screen, describing where the vulnerabilities and disabilities were with the contestants. It gave me a clearer picture of who was competing but also a sense of awe as how one does compete. I felt a little ashamed, and asked myself "what am I doing with my all-too-able body?" I silently vowed to take up Tennis again ...

The Paralympics brings to the front right and centre, "Hope", and "Resilience", and "Out of the box thinking". I saw immense innovation in reasonable adjustments for all the contestants to compete. Did anyone watch a Boccia game? Wow!

Sadly I dare not speak on a PAN Disability perspective so for the rest of the article I will only focus on those that are on the Autistic spectrum. 

Question: If I am on the autistic spectrum am I eligible to train for the Paralympics?

Answer: Google AI says "Yes", but other eligibility criteria apply. The Paralympics International Committee website also agrees highlighting that those with intellectual impairment would be eligible this of course is a whole host of labels and traits but what is been looked at is those that have social, conceptual and practical skills challenges and these areas are identified prior to the person becoming 18 years of age. These areas very much resonate with the autistic profile where predominate social cues are not seen/interpreted differently, or not learned organically, and conceptually one differs from mainstream understanding (I personally call this a "fresh perspective"), and finally where other co-diagnosis or traits might affect expected "executive functioning" - the ability to start a process from steps a - z with little or no support which can be a challenge especially when the expected activity makes no sense at all to the one that it is been asked of. For example, I would like my Autie little one to make a toast but the look on her face says it all. "Mum you have always done it and it tastes great, so why me, why now?", a fair point but I wonder if she realises the power that comes with that skill, "Honey, you get to make a toast anytime you like!"

What kind of sports can I do?

Answer: Now the games we would have seen would be the obvious answer, so Vicky why are you mentioning this? I feel it is very important to highlight why these games might be suitable. From an autistic person's point of view, self-direction and control can be very important so you want to think and explore sports where it does not involve a team (although this is not always the case), and I cannot recommend more one of the first books I read on the autistic subject "1001 great ideas for teaching and raising childing with the autism spectrum disorder by Ellen Notbotm, and Veronica Zysk" here we see Swimming, Skateboarding, Cycling, Tennis, Archery, Snowboarding, Horseback riding, Karate, Gymnastics, Sprinting, Marathons to name a few. These sports are usually a one-person game and self-paced, self-directed with a close coach relationship that understands their needs and can be routinised. 

Where do I begin?

Answer: Your local community centre. Try one or more sports sessions and see which one feels right. Enjoy the process even the setbacks as it all adds up. I would say that where available, do try the PAN Disability sporting sessions or SEND sessions first.

Where would you recommend in Brighton and Hove?

Answer: Good question I am also having the conversation with my Autie and working my way through the list, but Word on the Street mentions 

Whitedean Sports Complex for Climbing - https://www.high-sports.co.uk/

Three Greys Riding School - https://3greys.ecpro.co.uk/our-services

If you are not a Unpaid Parent Carer what can I do today?

Do you have a niece, nephew, or cousin under 18 or even a family trusted friend whose little one is on the spectrum, have the Paralympics conversation with them even if it appears they might not be aware or register you. Ask them what they know, if they know, how they feel, and what they might like to try. Tell them about the champions that were made, and sow the seed of hope.

In case you missed it 

All you need to know about Boccia https://youtu.be/rKw9kavRFbU?si=SK4UMGAmq7fZPRP1


1001 great ideas for teaching and raising childing with the autism spectrum disorder by Ellen Notbotm, and Veronica Zysk https://www.amazon.co.uk/Teaching-Raising-Children-Autism-Aspergers/dp/1935274066


Supporting this Blog

Thank you again for reading this article and getting this far, it takes some time as you can imagine to put in all the details today. My life and professional experiences are shaping my carer role and I hope to only bring helpful and important insights, over the years. Unfortunately, the current job market and roles as well as expectations do not favour or allow me to perform my caring role that does not compromise the quality of life for the person I care for, so my options are limited. But if you found something useful in this article would you consider donating to my Go Fund Me Page

Comments

Support my Blog

Popular posts from this blog

Your future self

  Take a moment and think back to the last year, or five, maybe just go back a few months. Is it all as you imagined, precisely as you imagined? My feelings are that you could be in a worse-off space or better, either way, it may not be as you exactly expected (especially if you went back 5 years and recalled a Global Pandemic!) and that is why your future self matters, not immune to the health, and mental state challenges/changes that happen to all, can you safely say that you will "never have a long term illness", "a disability", "care for someone or more than one person with disabilities", or have "a life-limiting illness"? I don't think you can. And in England and Wales this is what Personal Independence Payments (PIP) are there for! Setting personal feelings, and thoughts aside on who is gaming the system, one is reminded on the  GOV.UK PIP claim page   that the application process might be "the end game" for some! Oh Vicky, gr...

Time for Autism 2024 Conference - My January spark

I have just picked up Autism in Childhood , written by Dr Luke Beardon, and there is a dialogue between parent and child set in the future where the child who is born on the autistic spectrum wants to know why the condition needs a diagnosis to be recognised. It asks whether the predominant neurotype (PNT) or neurotypical as it is more widely known, was not diagnosed. The child, wanting to understand even further, was curious to know why persons on the autistic spectrum went to clinics for therapies and needed badges and markers. It was a bittersweet read because you long for that future, but you know the work needs to happen in the here and now.  Part of the work happening is the program for Doctors in training at the University of Sussex called "Time for Autism". Doctors in training (just about their final year) are paired up with a family that has a diagnosed person on the spectrum living with them, and Home visits (about 3 in total) are made. These Doctors get to speak to...

Jeremy Hunt, you missed a spot

I talk about #carers #upaidcarers #neurodiversity, #autismspectrumcondition, and dream of a #halfwayhouse. Retirees, parents(let’s be honest, Mothers), those living with disabilities, and neurodiverse individuals requiring scaffolding and more than the average reasonable accommodations, in a nutshell, economically inactive members of the public are being mobilised this 2023 spring to get back to work in Jeremy Hunt’s plan, but he missed a spot Carers! Before you jump on the bandwagon of oh, you/they do so much already, how can(dare) you suggest such! It is worth remembering that what we do is emotionally draining but woefully unrecognised. As an unpaid Carer, you are probably your most effective employable self. You quickly pick up new skills, multitask to the nth level, and maintain a calm composure in a world of rhetoric. In this role, there is no margin for error as the stakes are high, but despite these good works, first impressions of a Carer are mostly (unconsciously) greeted wit...