Skip to main content

I forgot about Carer's week UK

Second year in, and I forgot Carer's week again! This year it was between 5-11 June 2023. 

I remembered Autism Week, Mental Health Week, and Refugee Day on June 20th but not Carer's.

There are two ways I could handle this. I could regret a focused week long of information sharing and contributing through walks, runs, and campaigns, or I could blog about it now and share that it truly is hard to put aside any time for anything else that does not involve the core; the person(s) you are caring for.

I talk about #carers #upaidcarers #neurodiversity, #autismspectrumcondition, and dream of a #halfwayhouse.

Comments

Support my Blog

Popular posts from this blog

Your future self

  Take a moment and think back to the last year, or five, maybe just go back a few months. Is it all as you imagined, precisely as you imagined? My feelings are that you could be in a worse-off space or better, either way, it may not be as you exactly expected (especially if you went back 5 years and recalled a Global Pandemic!) and that is why your future self matters, not immune to the health, and mental state challenges/changes that happen to all, can you safely say that you will "never have a long term illness", "a disability", "care for someone or more than one person with disabilities", or have "a life-limiting illness"? I don't think you can. And in England and Wales this is what Personal Independence Payments (PIP) are there for! Setting personal feelings, and thoughts aside on who is gaming the system, one is reminded on the  GOV.UK PIP claim page   that the application process might be "the end game" for some! Oh Vicky, gr...

Time for Autism 2024 Conference - My January spark

I have just picked up Autism in Childhood , written by Dr Luke Beardon, and there is a dialogue between parent and child set in the future where the child who is born on the autistic spectrum wants to know why the condition needs a diagnosis to be recognised. It asks whether the predominant neurotype (PNT) or neurotypical as it is more widely known, was not diagnosed. The child, wanting to understand even further, was curious to know why persons on the autistic spectrum went to clinics for therapies and needed badges and markers. It was a bittersweet read because you long for that future, but you know the work needs to happen in the here and now.  Part of the work happening is the program for Doctors in training at the University of Sussex called "Time for Autism". Doctors in training (just about their final year) are paired up with a family that has a diagnosed person on the spectrum living with them, and Home visits (about 3 in total) are made. These Doctors get to speak to...

Jeremy Hunt, you missed a spot

I talk about #carers #upaidcarers #neurodiversity, #autismspectrumcondition, and dream of a #halfwayhouse. Retirees, parents(let’s be honest, Mothers), those living with disabilities, and neurodiverse individuals requiring scaffolding and more than the average reasonable accommodations, in a nutshell, economically inactive members of the public are being mobilised this 2023 spring to get back to work in Jeremy Hunt’s plan, but he missed a spot Carers! Before you jump on the bandwagon of oh, you/they do so much already, how can(dare) you suggest such! It is worth remembering that what we do is emotionally draining but woefully unrecognised. As an unpaid Carer, you are probably your most effective employable self. You quickly pick up new skills, multitask to the nth level, and maintain a calm composure in a world of rhetoric. In this role, there is no margin for error as the stakes are high, but despite these good works, first impressions of a Carer are mostly (unconsciously) greeted wit...